Just a little Sign, Please



 

When he signs "Love you" it's always to his sister, but this morning, it was to me, mom. My heart melted even if he did sign "Love you" while I'm changing a diaper.

 

 

When that perfect little bundle is handed to you and you stare down at those little eyes, that little nose, it doesn't matter who you are because suddenly that child in your arms is the most beautiful creature you have ever seen. To a mom, it doesn't matter if your little one is a boy, a girl, has Down Syndrome, is born with extra toes, born with sight problems, or is missing a limb. That child, resting in your arms is the most beautiful baby that has ever been born at that moment. Period. And you will protect, fight and love that baby with every thing inside you.

 

To most moms, especially NICU moms, that moment you lock them in the car seat to go home is the most joyous. You are now on your own after weeks or months in the NICU, to love and live with this tiny bundle entrusted to you. My Facebook post on the day we brought Bryce home after spending time in the NICU was:

 

"Ready......Set......GOOOOOOO!!! Here we go, all 4 of us are finally all together. Car seat locked in and off we go. Home."

 

From the time I was 17 weeks until Little B came at 34.2weeks, I fought to keep him in. I was on bed rest because of my high blood pressure and because Little B had tried to come as early as 21 weeks. I would lay around all day with a 4 year old active Miss A and try just to keep from having contractions. I remember one night, rushing the 25 minutes to the hospital, tears streaming down my face, praying to God "Please please not now!" I was having such strong contractions that I couldn't stand up, I couldn't breathe and they were coming every 2minutes. I was wheeled up to Labor and Delivery and when I saw the tiny NICU incubator and the 2 NICU nurses, I lost it. I was only 29 weeks, no this couldn't be happening. Thank goodness the doctor's controlled my labor and, after a 3 day stay on the L&D floor with meds pumping in my system, my contractions finally stopped. It would be 4 times total that I would be admitted and kept in L&D until finally, at 36 weeks, I was too far dilated to stop the labor safely. Little B was born with a hole in his lung called a Pneumothorax which caused his lungs to not inflate and my little man to struggle to breathe. After a CODE BLUE (where B stopped breathing altogether) and several very scary set backs, we were released from the NICU. We brought him into the doctor's office at 6weeks and had his hearing checked again, since he had failed both hearing tests in the NICU. He failed the one in the office as well. We were told he was very little and many times a NICU baby will fail a hearing test until they reach their gestational age. He would fail his hearing tests once more.

 

At 11months, thinking he had an ear infection, I took him into the office for a check up. He didn't have an ear infection, but the doctor noticed his ear canal was misshaped. He sent us home with instructions to see a specialist. The specialist would tell us that Little B was born with an "Organic Malformation" of his Ear drum and Ear canal. This means that when B was in utero, his ears didn't form right. We were told that he was deaf, that he would never talk. Big B and I were devastated. This was May of 2012.

 

How could we have a child who was deaf? How could that be? This wasn't in the plans. We had gotten pregnant with B without fertility drugs, without a doctor's help. that was a miracle since we were told we would not conceive without help and up until Little B, we hadn't. Then we dedicated Little B one year after we were told we would not conceive with IVF, to the month. Surely that was a sign, right? B was born is such a dramatic fashion, but he has never had breathing issues since, didn't need surgery and the hole closed so completely that the X-Ray Tech and the NICU doctor both had to make sure it was there to begin with. Surely that was God saying "I've got this Sticky Family". That HAD to be a sign, right? Deaf? Our baby boy was deaf? D-E-A-F! No, no NO...... clearly that had to be a mistake.

 

It wasn't. We spent the entire summer of 2012 talking to audiologists and speech therapists. We started getting services from Easter Seals and went to group play therapy. Our little man couldn't hear. As much as I would have liked to say " we took it all in stride" we didn't. Big B denied it because this was his little boy. I told only a handful of people because, right or wrong, I felt guilty for not being able to keep him in until the full 40 weeks. This was my fault, I just knew it. It wasn't my fault, it wasn't anyones fault.

 

By the time August came around I had absorbed myself in self pity long enough. I made one post on my Facebook page, telling all of our friends and family the news:

 

"After feeling sorry for myself for 3 months, I am finally done. Little B is deaf in his left ear and HOH in his right. We may have a child who can not hear, but his smile can light up a room."

 

The out poring of love from our family and friends was amazing. We had people getting us in contact with mother's here in our little part of Texas who were deaf or had hearing impaired kids. We had people who I knew had hearing problems calling and talking to us. I became closer to a women I know, who I now consider my "sounding board and helpful hints" in the deaf community. (Thank you Kimberly!!!) We had this amazing support system and we finally felt it okay to say the words "Special needs" without crying or feeling a choking since of anxiety.

 

It is now January 2013 and we have had so many amazing signs that our Little B is a true miracle. First is, we were told he was missing a a bone is his left ear. We had two scans confirming the missing bone, but after he was prayed for, the next scan showed a very underdeveloped hammer (the bone he was missing). The next came in speech. For months, Little B had made no oral sounds to try and speak, but more recently, he has made great strides. He now waves and says "I". He understands some simple commands and can sign up to 20 different signs. He is truly amazing, and we are no longer afraid to tell the world about our little boy.

 

Still, with all this wonderful strides he is making, I still worry. You see, this week is the week he gets his hearing aids. This week is the week we go and get those outward signs that says "something is wrong" to the world. As a logical person, I know that is really is needed and helpful and important, but as a mom.......... As a mom I am scared. Will people stare? Will they say something rude? Will they judge him? or worse feel sorry for him? Will kids make fun of him when he is a little older? Will he fit in? I'm scared. I'm nervous.

 

I know that once the aids go in, his speech will improve. I long to hear him say "Mom" just once. I will cry the day he does because I have waited so very long for him to say anything, but that word "mom"...... that is my dearest word. I can't wait to watch his face when has hears his sister's voice or when he hears music. I understand these aids are important, I get it. I'm just nervous. No parent wants their kid to be "different" even though each child brings with them a difference that is profound and all their own. Once he puts on the hearing aids, the world will know that he can not hear correctly without them. It's normal to feel apprehensive. It's okay to have these feelings. It's okay to feel unsure about the future. It's normal. Every mom or deaf person I have talked to has had these feelings or something similar, so I understand it's okay. I know that our little community of family and friends who love us will accept Little B no matter what he looks like, But the world can be cruel sometimes and I worry. 

 

He is my Little B, my little miracle, my little man. He is my child and I will fight and protect and love him. I will change him and tear up when he signs "Love You" and rejoice when he dances with his special headphones on made for HOH people. I love him because he is my baby. I thank God everyday for giving me him.

 

But I worry.

 

Mama Jelly 

 

 

 

Oragnization in the mist of paper confetti

Today I have a helper who is eager to learn all about organization. Okay, the truth is, if I get out my computer, Little B gets out his and then signs for me to "sit". He likes to work alongside mommy, but working is hard, so a snack is always needed.

 

 

Yesterday I sat down 4 times to write a blog post about organization and my quest to have a better organized home by the end of 2013. Each time I sat down, inevitably one or the other child would need something. At one point, I was doing the chores list I printed out. I was going along, checking off things and feeling accomplished. I was one proud peacock, until I turned the corner and saw that both kids had found the one confetti stick from New Year's Celebration at the Children's museum. For whatever reason I had put one of the confetti sticks, still full, into the diaper bag and carried it home. I'll stop here and mention that it never fails, my diaper bag is a variable "Mary Poppins" carpet bag. I promise, sometimes I pull out lamps and mirrors from the very bottom...... maybe even a potted plant or two.

 

I digress. One of the kids, the youngest dirtiest one, found this stick and was shaking it. A few pieces of tissue paper confetti came out. This prompted the other one, the larger less dirty one, to grab the stick and shake it hard. There was a loud POP and BAM! Confetti everywhere. Both kids thought this was a perfect way to spend a few minutes and proceeded to throw the confetti around. I, however, looked on my carefully thought out chores list for "clean up confetti", sadly it was on there. I think the original author is missing out on not cleaning up confetti. It wasn't until last night, when I, at 2:30am finally crawled into bed, found more confetti on my side of the bed. Apparently the stairs were not enough to contain this awesomeness, and one of the kids felt the need to stuff our covers with it. It was like a party happened in our bed and I was the last to arrive. Sigh.....

 

Anyway, what's the point of today's post? Organization? Oh yes, that's right. I was on my favorite site PINTEREST!!!! Pinterest oh how I heart thee.

 

I'm on Pinterest in preparation for my organizational trip this year. I stumbled across a few "Home Management" binders with free printables and great ideas. I started thinking "why yes, I do believe I can put together a home Management Binder". I came across a really great article on Money Saving Mama. she has several free printables to add to a home binder. I say, go check it all out and use what will work for you. Today, I'll walk you through my first few pages.

 

I mainly used this one site for the majority of my binder. This women makes organizational skills look effortless. I wonder if I should hire her to make me organized and therefore I will make it look easy? Hummmmm something to think about.

 

Anyway, the blog is called Organizing Homelife and she sure does. Here is the link to the beginning of her 31 Days of Home Management where she has all her printables for her binder. They all rock!!! Check out the link Here.

 

 

So to start, here is where I am at.

I used an old school binder from college way back when I went in 1778. It's the first binder ever made! LOL

 

 

So here I should mention that I am....... um thrifty? Okay, I'll admit it, I'm cheep. I didn't want to print out 365 pages of "daily chores" and "daily Plan of attacks" so I did what we do in homeschool. I made wipe offs the cheep way.

1 sheet of printed on paper

1 page protector

1 dry erase marker

 

TA-DA

(Jazz hands? Yes, I think it's warranted)

 

 I guess Little B either found the dry erase marker, or he has a plan of attack he wants known.

 

I printed out the "Plan of Attack" sheets from HERE in this LINK. I like these because it gives me a quick snippet of what the day will bring, what times things occur etc. Even having a place for me to plan out Breakfast, Lunch and Dinner. I know, I'm creative with my waffles and Leftovers.

 

These I covered in those page protectors and then, at the end of the week I just wipe it off and start over.

 

Money Saving Mom has a ton of Printables to choose from to make up what some Home Management binders may lack for you. While I mainly used one, I added some pages from here as well.

 

 

I am currently using her own cleaning list until I can come up with some of my own add ons. For now, she has a great stepping off point.

 

 

So there you have it, the start to my Home Management Binder. Tomorrow I'll show how I do my calendar, manage my blog ideas, and manage my ever growing to-do list.

 

Mama Jelly

 

 

 

 

 



Mothering My Valentines

Valentine's Day sparks so many lovely (and many not so lovely) acts of love. People all over the world and all over Facebook and Twitter and even yes (gasp) Pinterest are showing the love today. I've seen blog post after blog post, legions of men and women voicing their own opinions of this particular day in February. I suppose this means I get to add my voice to the sea of people shouting "hey look at me!" on this day.

 I've always wondered "why" on Valentine's Day. Call me a hopeless unromantic but I don't want Big B to show his love towards me with a gift on Valentine's Day. I guess this puts me in a small number of those who really just don't "get it". I guess I'm just selfish and self centered, I want Big B to show his love everyday, in little and big ways, not just buy me a card that someone else wrote to express his love for me.  Some of the best expressions of his love for me have been on random days, and "just because" moments. Like after we brought home Miss A and she was so small. Big B went to the store and brought home two white lilies, one was for the memory of the loss of our son Gabriel and one for the joy of the birth of Miss A. They were attached together from the same stalk. Even 5 years later, that moment makes me cry. Or the time he came home from work after I had been dealing with a very colicky Little B, and he brought home milk and coffee filters and took the baby so I could take a nap. Talk about romance, I still smile when I think of that moment in our marriage. I looked like a hot mess, dirty and worn down with I'm sure spit up and other kid fluids on me, Miss A was still in her PJ's and he just came home, took Little B and took over. Sigh....I have hearts in my eyes.

Valentine's Day just makes me feel like a big fat failure as a mom. I get a little jealous of pictures of the awesome ideas my mom friends show on Facebook, I must admit. I don't do heart shaped food or make red cloth forts in the living room. I don't hang paper hearts or sew up felted chair covers with everyones name embroidered on the back. I don't decorate or even have any red sprinkles in the house........ I know shocking, but I looked to make sure and nope, no red. There is pink sprinkles from I don't know when in the back of the spice rack. I don't sit down and do a Valentine's craft with the kids either. This part kinda makes me sad that I don't. I should, I should make Miss A and Little B make something for Daddy. I do crafts all the time with them, so I don't know why I've never done a Valentine's craft, ever. Miss A makes pictures and Big B takes them to work or we hang them here at the house. My point is, shouldn't the kids know that love is shown everyday? I feel that putting this pressure on everyone to show your love on a particular day, makes you feel awful if you don't live up to the other persons expectations.

Even though we don't do anything organized for each other on the 14th of February, doesn't mean nothing gets exchanged. I woke up this morning to Miss A who gave me a piece of computer paper with stick figures drawn on it and a ton of little beads glued to the paper. She crawled up into bed with me in her Little Mermaid PJ's and said "Mom, I made this for you. It's because you love my fancy self." My heart melted. I currently have the masterpiece hung up on the fridge, the place of "high honor" in our house. What she was saying to me this morning, early I might add, is that she feels loved everyday just for being her. Miss A dances and laughs and pretends to be a dog (thank you Disney Movie Club for Lady and the Tramp) and I still love her. Even in her rain boots and tutu and glittery purse. Even when she is acting crazy and wild and making me laugh. I love her simply because she is herself, exactly the way God made her.

It wasn't that long ago, when celebrating any holiday would send me into a state of depression. Being told that you have PCOS and being told that you had unexplained infertility, doesn't really lend yourself to the warm and fuzzy ,lovey feelings. It wasn't that long ago where I was in a doctor's office, being told what the next step in our infertility journey would be, one Valentine's Day. At those low and heartbreaking moments in our marriage, I didn't want a card from Big B, I wanted a partner. A wanted someone to be strong for me and love me and say "I know this will work out alright. I prayed to God for this." I wanted to be told that even if we never had another, that he was okay with the special Valentine God had given us. There are everyday moments burned in my mind of Miss A and her daddy, of watching them love each other and support each other, in the only mystifying way a little girl and her daddy can do.

Then last year, when we were told there was nothing more to be done, last Valentine's Day, I was carrying our little cupid. A tiny baby that fluttered for the first time on February 14, 2011 and I felt it. Then Little B was born and I felt so much love for him and some much fear. He was born 6 weeks early and was in the NICU. Once we brought him home, I felt such a feeling of love and responsibility to him.  My children and my husband have become my Valentine gifts. They bring me joy and sorrow, laughter and frustration. Sometimes I wonder if I am actually cut out to be their mother, friend, teacher, cheerleader and disciplinarian.  I wonder sometimes how I come across to my husband and try and work on a better way to show my appreciation and love for him.

 You see to this women, Valentine's Day holds no weight, no value. We show our love for each other all year long, everyday, in little ways. We grow as a family and live as a unit. We make mistakes, we hurt each others feelings but we also apologize and build each other up. Big B and I try as parents to instill in our kids the feelings of self worth and self esteem. We pray for our children, pray over our children and pray over our marriage. We are not perfect, far from it. Instead we love the fact that neither one expects the moon and stars, so it is such a blessing when we see them. 

As I sit and listen to Miss A making Little B laugh, I am reminded how to spend a lovely Valentine's Day. We will cook dinner tonight, there will be no heart shaped anything, and we will laugh and talk and be a family. Later, I'm sure we will watch a movie (Finding Nemo for the millionth time) and I will nurse Little B. We will celebrate the fact Little B is learning to roll to where he wants and grasps objects with ease.

 This will be the best Valentines Day ever, simply because we are together.

Mama Jelly